Daily Productive Sharing 1020 - Questions Are Appreciated

One helpful tip per day:)

How should people treat someone with a severe congenital illness?

Mariah Hillis has undergone a tracheostomy and relies on a ventilator due to a congenital spinal condition. Despite these challenges, she remains strong and optimistic. She hopes others understand the following:

1. Her illness is not her choice: Despite the hardships, she never misses a class.
2. She wants to be heard: Feeling heard makes her feel special.
3. Her life is different: It's not about regular work, study, and rest, but about living well before the next ICU visit.
4. She doesn't like being stared at: However, she welcomes questions from others.
5. Most importantly, she is human too: She has dreams, plans, and friends just like anyone else.

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一个有着先天严重疾病的人希望别人如何对待他们？

Mariah Hillis 因为先天性的脊柱问题，所以接受了气管切开术，并且一直使用呼吸机。但是她依旧坚强乐观，她希望别人明白：

1. 她得病并不是她的选择。尽管生活如此困难，但她从不缺课；
2. 她希望被听见，当她觉得自己被听见时，会看到非常特别；
3. 她的生活不是常人的工作，学习，休息；而是在下一次进 ICU 之前好好活着；
4. 她不喜欢被人盯着看，当她欢迎别人问她问题；
5. 最重要的是，她也是一个人，她也有梦想，也有计划，也有朋友。

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